The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure. As the leader in research funding, our continued goal is to raise awareness and funds through special events, projects and the media.

We are truly in a race against time for the lives of many EB children. The more we raise, the faster the research, the more lives we save. Your gift will bring us another step closer to the reality of healthy lives for someone with EB.
The EBMRF is unique in that we pay no salaries. All work, including executive, development and administrative, is done on a volunteer basis. Our minimal operating costs enable us to direct a full 99% of your donations to our research programs.
On behalf of all who suffer from this devastating disease, we sincerely thank you for your generosity.