The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure. As the leader in research funding, our continued goal is to raise awareness and funds through special events, projects and the media.
Media
Oprah's Big Give
The EBMRF's GivEBig with Eva Longoria and other EB supporters was featured on Oprah and raised $1 million!
ABC news
CelEBrity Cards coverage
Shannon Montez montage
EB related photos taken by photographer Shannon Montez
Dr. Lane talks about EB
Alfred Lane, MD, discusses EB research and treatment
Courteney's crusade
Courteney Cox on Access Hollywood, August 15th 2006.
Andre Hermann Photography
Garrett: The Boy Beneath The Bandages