Mailing & Administrative Offices:
Andrea Pett-Joseph a.pett@bep-la.com
8909 W. Olympic Blvd. #222
Beverly Hills, CA. 90211
310-854-0957


President and Founder:
Lynn Anderson ebmrf@comcast.net
130 Sandringham Road
Piedmont, CA. 94611
510-530-9600














CelEBrity cards from your favorite STARS now available-see WEBnotes for details-


-Designed exclusively for the EBMRF by Courteney Cox & David Arquette, this beautiful butterfly necklace is now available at SATYA boutique in New York, or online at www.satyajewelry.com Only $24!



A donation of $.25 from each sale of three products from the NuSkin Epoch line: Firewalker, IceDancer and Glacial Marine Mud, will be donated to the EBMRF.
To purchase these products and make a difference for EB patients, visit www.nuskin.com.

  

Welcome to the EB Medical Research Foundation Web Site
The EBMRF is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure.
Hello. My name is Brandon. I was born with a rare disease which makes my skin hurt. My body is wrapped in bandages to help my sores heal and stop me from tearing my skin if I fall.. My mom and dad take very special care of my delicate skin and have to bathe me very carefully.

I like to play with my 2 dogs and 2 cats (they make me laugh a lot!) and I'd like to learn to ride a bike someday, but I have to be very careful.

I hope that doctors can help us find a cure for this disease so that children won't have to be in pain anymore.

Thank you for looking at our website and for supporting the EBMRF.

Hello, my name is Garrett. I'm wrapped up like a mummy to protect my body which is covered with open wounds that hurt all the time. My skin is so fragile that even clothes rubbing against my skin make sores or blisters. Whenever I try to play like my brothers and sisters, I get hurt.

My sores drive me crazy because they itch all the time. When I scratch, they get bigger. Every day I spend about 3 hours taking a bath and having my bandages changed so that my wounds won't get infected. I cry a lot during the bath because it stings so much. Afterwards, my mom and I are both worn out.

If enough people care, I won't have to hurt my whole life. Scientists are developing a gene-therapy treatment for me and the people around the world who suffer from epidermolysis bullosa. Without research funding, we will always hurt.

Please take some time to look through this web site and learn about the EB Medical Research Foundation and what it is doing to help kids like me. You may also learn more about EB and how it affects young children.

Copyright - Epidermolysis Bullosa Medical Research Foundation - All Rights Reserved
Federal Tax ID 94-3130081
The EBMRF is a 501 (c) (3) non profit, tax exempt organization designated by the Internal Revenue Code