Welcome to the EB Medical Research Foundation Website
Jackson Browne brought down the house at our 2nd Annual Rock for EB event in Malibu with David Spade.
Eddie Vedder & Zach Galifianakis rocked for EB!
AMAZON SMILE-every time you order from Amazon using our code, our Foundation will get a % of the sales, no order is too small-it all adds up! Click here to start shopping: SHOP AMAZON/EB!
Exciting Research News!
Through a Matching Grant with The JGSF and The University of Minnesota, The EBMRF has successfully funded a $900,000 campaign for the gene therapy work of Dr. Jakub Tolar, which will allow him to advance his cutting edge research for EB.
EBMRF joins forces with JGSF to create new EB Consortium
EBMRF awards $150,000 grant
Exciting News! The EBMRF has awarded a $150,000 grant to USC's Dr. David T Woodley and Dr. Mei Chen for their ongoing research of protein replacement therapy
Oprah's Big Give
The EBMRF's GivEBig with Eva Longoria and other EB supporters was featured on Oprah and raised $1 million!
GIVING BACK WITH STYLE
To celebrate EB Awareness Week and The Holiday Season, Gorjana and Kaley Cuoco Sweeting have partnered with The EBMRF. Great gifts for the Holiday Season and beyond! Check out the line at Gorjana's Website.
"I'm so happy to be partnered with The EBMRF and Gorjana on these pieces that reflect my own personal style.
EB is has touched me personally and I think this collection is a beautiful way to raise awareness. I hope together we can find a cure for this disease."