Welcome to the EB Medical Research Foundation Website


Eddie Vedder & Zach Galifianakis rocked for EB!

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AMAZON SMILE-every time you order from Amazon using our code, our Foundation will get a % of the sales, no order is too small-it all adds up! Click here to start shopping: SHOP AMAZON/EB!

Exciting Research News!

Through a Matching Grant with The JGSF and The University of Minnesota, The EBMRF has successfully funded a $900,000 campaign for the gene therapy work of Dr. Jakub Tolar, which will allow him to advance his cutting edge research for EB.

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EBMRF joins forces with JGSF to create new EB Consortium

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EBMRF awards $150,000 grant

Exciting News! The EBMRF has awarded a $150,000 grant to USC's Dr. David T Woodley and Dr. Mei Chen for their ongoing research of protein replacement therapy

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Oprah's Big Give

The EBMRF's GivEBig with Eva Longoria and other EB supporters was featured on Oprah and raised $1 million!

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